Morgellons Disease: Tips for healing lesions, tooth care and environment

Information for dealing with Morgellons lesions using topical aids as well as FAR infrared technology. Also addressed are teeth problems and environmental issues.
Please note that I do not recieve commisions or sell any of the products listed.

Lesions

In Donna's words (from a facebook forum):

This was my life from 2008 until the end of 2010 when I bought my
Far infrared sauna suit.

http://www.anpancn.com/productdetail.aspx?MenuID=0103020202&ID=51

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The second product she used was the suit below, which she purchased in 2011 and is still going strong despite her rough usage.

http://www.made-in-china.com/showroom/cherrybobo/product-detaildoeEIWbKLrhc/China-Far-Infrared-Sauna-Slimming-Suit.html

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I just saw the suit shown auctioned at $68 on eBay. The starting bid was $6.99. Deals can be found if you are vigilant.

http://www.healthandmed.com/p-2848-fir-real-far-infrared-fir-sauna-blanket-w-3-zone-digital-controller.aspx

 

Please note that some of the links below, are talking about specific products. I only provide them for reference about the technology. You need to do the research and decide what unit would work best for you. I have had an MPS unit for more than two years that I bought from Dr. Staninger. It is just a pad about the length of a torso. It was quite expensive, and at the time of purchase was not aware of sauna suits. I still use it. If I had to buy a unit right now, I would not purchase this unit again but would go for a suit or blanket that envelopes the entire body as I think these would be much more effective then having a pad.

Helpful links to learn more about FIR technology:

http://www.youtube.com/watch?v=BY8QP_GTXKo&list=PL2B7FE8496D4783F8%EF%BB%BF
Infrared Light Therapy by Len Saputo, MD

http://www.farinfraredhealth.com/questions-infrared-therapy.html
Answers about Far Infrared Therapy. Learn how Infrared Therapy will benefit your health

How does Far Infrared Therapy really work?



http://www.firheals.com/store/index.php?route=product/category&path=59_99

The provided will link to research. They've moved things around on their site, so I don't know where the copy below is now situated.

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Far Infrared Therapy, or FIR Therapy is also a kind of light therapy and heat therapy, it works to enhance health through following principles:

• Improve micro blood circulation by soothing blood vessels, which are biologically beneficial.
• Increase the delivery of oxygen and nutrients in the blood cell to the body’s soft tissue areas
• Enhance white blood cell function, thereby increasing immune response and the elimination of foreign pathogens and cellular waste products.
• Remove accumulated toxins by improving lymph circulation which are often at the core of many health problems. The build up of toxins in a health body could block the normal blood circulation and impair the cellular energy. When FIR waves are applied, the water molecules that encapsulate the toxins get heat up, and start to vibrate. This vibration reduces the ion bonds of the atoms that are holding together the molecules of water. As the breakdown of the water molecules occurs, encapsulated gases and other toxic materials are released and the body gets rejuvenated.
• Promote regeneration and fast healing
• Increase metabolism between blood and tissue.
• Stimulate the hypothalamus, which controls the production of neuro-chemicals involved in such biological processes as sleep, mood, pain sensations, and blood pressure

http://www.chimachine4u.com/fir.html
Far Infrared Therapy - FIR, Heat Therapy, Cancer, History, Benefits 

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Below text is from Tina Lyme Morgellons (facebook) who used a FIR sauna bag and then a pad:

"The one I used and LOVED was actually a bag. That thing was awesome. I was strung out on it for a while. It was amazing and although I was doing a lot internally...herbs, immune support...I do think it helped me a lot and know it helped me with pain and inflammation.

I think the bag was the very best for me. It got the FIR all over my body heating me up and making me sweat. Just to clarify, FIR is a light therapy. There is heat involved obviously because of the nature of light—it makes heat. A lot of people think FIR is only to make you sweat. I think it is good when you also sweat along with the light. I am mentioning this because people with Morgellons know they flair when they sweat and it was like that for me as well but NOT when I sweated from FIR. FIR is light. It is the furthest red on the spectrum and that spectrum of light is a very healing kind of light for humans and animals too.

Incidentally the military has used FIR for ages for detoxification purposes. There is another benefit to getting warm, which is helping to get your core body temp up. Most of you may have found your body temp is very low. At my worst mine was 94 degrees. This seems to be part of Lyme and I think Morgellons. I did everything I could do to keep my body temp up, hot, hot baths, FIR and bundling up. Stay warm. Throughout my recovery I checked my temperature. This last year is the first time in my life that my temp is 98.6 on a regular basis. I'm no Dr., but I know for sure when my body temp is normal, I am feeling well.

I always thought it was normal for me to run low, as I can never remember not running low.

It doesn't seem to be normal though, because now that it's up, it stays up, I'm feeling good. None of this is medical advice and all of it is based on only my own VERY un-scientific observations.

One last comment. Do not get the FIR that Staninger endorses..it is a piece of crap. MIne is. It is broken more often then it is not. The controller has had to be replaced twice and now it is broken again. I have hardly got to use it. Plus the bag is better. Thats only what I think..."

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The bag that Tina liked and used is shown below. She got hers from Ebay, UK http://cnanpan.en.made-in-china.com/offer/OoqQLndbficV/Sell-PH-2B3-Body-Reducing-Fat-Sauna-Bag-Far-Infrared-Body-Slimming-Wrap-Heat-Digital-3-Channel-Remote-Control-Portable-New.html
If the link changes or doesn't work search: H-2B3 Body Reducing Fat Sauna Bag Far Infrared Body Slimming Wrap Heat Digital 3-Channel Remote Con



Please note, both Donna and Tina have had breakdowns with their equipment, so do your research as best you can and handle the product with kid gloves.



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More on lesions: Manuka Honey

A Morgellons sufferer who has had lesions for 27 years shared his method of healing using Manuka Honey. He also stressed that it is important to cover any open sores. His experience is that if lesions ooze onto clothing, you can spread the infection via the fabric. 

"For the last 5 years I have treated my skin lesions with manuka 16 umf honey dressings. It will expel the entire "package" (biofilm/fiber bundle), in about 6-12 days.
 
I tested many varieties of honey, dressing tapes and dressing material over the years and found 3M micropore tape (2"x2") to work best, using two layers and leaving a 3/4 seal boarder to seal in the honey. I use Curad nonstick pads 8"x3" and cut them to size with scissors. Basically I use a 3/4"x 3/4" cut square on a double layer 2"x2" tape with a 3/4" seal. It feels good under clothes. Sometimes I back the square with another square which is "dry" on the back of the first honey soaked dressing square. This prevents leakage. Works really well.
 
I use the dressing method 24-7. Lesions are always covered. I treat new lesions immediatly before they get worse. The manuka honey grade must be at least 12-16 umf rating or MGO 400 minimum depending on the company test or it will have little effect. Umf 5 will heal but it is slower. Manuka dressings are very soothing on these types of wounds and I do not stop the treatment until it responds fully, which it always does.
 
One unique advantage is manuka honeys ability to rapidly re-granulate the wound after the expulsion process. New pink skin will emerge and the area is pain-free to the touch. It also has the unique ability to stimulate immune cells at the wound site, something that no over-the-counter or Rx product can do.
 
This works well for me because I do not have to endure pain as previously, because manuka honey is an excellect analgesic. You just need to take a little stinging for the first 10 minutes on larger wounds, on smaller wounds it is not noticeable.
 
Depending on how aggressive the wound is I will change the dressing once in 24 hours or every 12 hours on aggressive active wounds.
 
To remove particles (fiber knots under the microscope),  I use virgin coconut oil over the whole body. Massage it in and they come to the surface before they can grow laterally in the skin layers. I do not have to do this to often though.
 
Enzymes make a whole lotta sense also."

Lesion treatment from Homeworld:

He's has been battling lesions for two years. When he tells me he finds something that works, I pay particular attention because he has been hitting this disease hard.

Please note that he does not feel pain when using GSE, however I know that others say it burns and KEEPS burning when put on an open lesion. I'd do a small test to make sure you can handle it before using. Better yet, dilute with water and see how that goes before using full strength—and please heed homeworld's note about using undiluted GSE full strength over large tracts of skin.

Grapefruit seed extract Nutribiotics brand 33 percent citricidal.

homeworlds strategy:

"Have been plagued by very persistent lesions on the face...arms...
the experiments that I have done with GSE and urine indicate that GSE annihilates the gel forming bacteria.
 
OK...a week of GSE on the face lesions...and they are nearly gone.
Mind you, they have been hanging in there for months.
...look in mirror...looks MUCH better...
drag USB scope over the lesion areas...new skin growing...

Technique is to pull the morg "scab" off to enable the GSE to
contact the lesions [and the bacteria] head on. No interference from the
"plastic" morg "scab."  Have found that constantly removing the scabs is pretty
much a requirement for anything that looks like a timely "healing"...as the scab is
protecting the destructive activity going on underneath.
 
The time I made a point of leaving a scab alone...[on a leg, hidden under trousers] it grew to over 1.25 inches across...at which point I 'surgically" removed it. [Youtube video of this]
Attacking it with peroxide only made the scab pretty much rock hard...and utterly dense with fibers that grew into flesh. Cutting the whole mess out was the first step to getting it to heal.
...at any rate...yeah...GSE seems to be very useful. Now if only it could be ingested in sufficient quantity to kill the morg bacteria in the gut...without killing the host..."

A note of caution regarding GSE...
I have been applying  Nutribiotics brand GSE [33% citricidal, 67% glycerin]
undiluted to lesions. It does seem to slow down the production of the gel/plastic scabs.
Tests on the morg bacteria on slides shows that it does kill the bacteria that makes
the gels.
 
Had a major breakout of lesions on one side of my face. Lots of lesions, close
together. I applied GSE full strength to the facial skin...or what was left of it.

......umm..no..bad idea..the skin around the lesions that was "in range" of the morg
lesion [say...appx one lesion diameter or so] became damaged in some sort of
interaction between the morg chemistry and the GSE...the skin became...plastic like. The normal skin on the "clear" side of the face was not adversely affected by the GSE.. only the "undamaged" skin near the lesions. It seems that the morg chemistry persists for at least one "lesion diameter" from the edge of the lesion, and that skin reacted...oddly/badly to full strength GSE.
 
I no longer apply undiluted GSE on large areas of skin..I cut it down significantly
to avoid such "collateral damage." I still apply the GSE undiluted to open lesions...
to get "enough" of the [appx 10 mg/per drop] of citricidal into the mass of morg gels/
bacteria to be effective. The GSE does not burn/generate pain. Other chemicals
do...such as hydrogen peroxide and an over the  counter skin cream I am experimenting
with to assist the skin in healing.

Teeth

Oil Pulling
Message below was sent from a friend (who does not have Morgellons) so you can see his methods. I think he's got the right idea.

"A tooth has been troubling me and I have found fasting while taking massive doses of Vit-C, Olive Leaf Extract, Oregano Oil, salt water rinses and oil pulling www.oilpulling.com can reverse damage and heal a tooth. Teeth are living tissue and can remineralize, although is not common knowledge. I healed a molar last year. Was a real head-banger—the pain was so bad. Swollen jaw, lymph nodes enlarged and sensitive, ear and nostril affected. I was going to get the bugger yanked but decided to cruise the web first. Sure enough, there are those courageous and marginally insane folks who refuse to succumb to the drill and are healing their own teeth. That's all the encouragement I needed. It was tough, and at times scary but the tooth did heal."

 
I'd like to share my experience with oil pulling using coconut oil. Three or four times in the three years since getting Morgellons, a sore has popped up on the roof of my mouth near the teeth. In the past, it has taken up to two weeks to fully go away because brushing the teeth rips open the sore which bleeds. The last time I got one of these sores I decided (after two days) to begin coconut pulling. I swished the oil around 20 minutes in the morning upon awakening and in the evening before bed. After the first day of doing this, I noticed a marked improvement. It took three days of treatment to make what normally took two weeks to heal, happen. Hallelujah, I see the light. Since then, I've continued to do coconut pulling at least once in the morning.

I have to admit, I'm pretty obsessive when it comes to my teeth. I lost a tooth to gum disease before getting Morgellons, so am vigilant with my care. Things I have used on my teeth over time.

Bentonite clay Rub the gums with it before bed (and leave it in the mouth). It's fine if you end up swallowing it in your sleep as it's very healthy and helps with detoxification. For those that take Bentonite internally as a detoxifier, note that it should be taken away from supplements.

Garlic is a natural antibiotic I have experimented with extensively for fighting infection both internally and externally for years and can attest to it's antibiotic properties. In times of war, garlic has been used on soldiers in the trenches applied in open wounds to prevent infection (big ouch!).

For teeth, garlic can be used externally. Slice a thin strip from a clove and place it directly on the gum at the site of infection. Leave it on for a few moments or until you feel discomfort, then disgard. If infection is bad, I'd repeat this a few times a day. I've used this method on my teeth before I even had Morgellons with good results.

If you feel you've got a serious infection in your tooth, taking garlic internally, might be a secondary support to your system. Make sure there is food in your stomach before ingesting raw garlic as it can burn in the most brutal fashion. Grate a clove, put this on the back of the tongue and swallow with water. Use only a half clove (or less) at a time to make sure your stomach is okay before taking a whole clove. Ingesting raw garlic before bed can be disruptive to sleep and has given me bad dreams. Also, some cultures like the Chinese, believe too much garlic overstimulates the liver, which can cause fitful sleep. If you have problems sleeping, best to leave internal dosing alone. Cooking the garlic destroys it's antibacterial effect. 

Note; If left on too long, garlic like GSE, can burn the skin causing eventual peeling of the skin —although I've found the infection to go away even when I've been too extreme in my method of application.

Floss daily, if you have serious gum disease you might have to floss after each meal, but that's for those with a big problem, most can get away with once before bed. In addition to flossing, I sometimes use a proxa brush which a friend turned me onto. He was able to reverse gum disease using this. It massages the gums and pulls out debris from the teeth even after flossing.
(I'm not endorsing the site mentioned in the photo, just wanted to show an image of the brush and cylinders.)



Use common sense. If you have a bad abcess in the mouth, and feel the infection has progressed to a serious stage, you will need to determine if antibiotics are the way to go. I had a really bad infection (pre-Morgellons) that I took antibiotics for and feel that was the best choice at the time.

Thought this was interesting as supportive evidence of coconut pulling...

Coconut oil could combat tooth decay September 2, 2012
Coconut oil attacks the bacteria behind tooth decay and could be used in dental care products, according to research.

http://www.bbc.co.uk/news/health-19435442

In the article, researchers mention that coconut oil combined with enzymes can attack the bacteria behind tooth decay. Interestingly, the process of swishing coconut oil in the mouth releases enzymes from the salivary glands and probably kill bacteria in the same way as these yet to be invented products will.

Hair: Jason's Dandruff Relief This combines a lot of the ingredients that sufferers have been using as separate treatments all into one product.

Contains: MSM, Neem Oil, Tea Tree Oil, Colloidal Sulfur and Rosemary

Available at most Whole Foods stores or order online. Costs around $12-15

Shampoo into scalp and leave it on the head. Cover the scalp with plastic shower cap which will heat things up. Leave on for at least 10 minutes. This shampoo is not an end to the suffering on the scalp, but will lessen the misery. I've recommended it to many people and it's helped. Many people have also tried Selsun blue dandruff shampoo with good results (although I have not tried it.)

Environment – Menthol crystals

I wrote the copy below a few years back for morgellonsfocusonhealth.com. At the time of writing, I believed that I had had some sort of infestation in my apartment. I am no longer sure this was the case. However, if you do have a bug problem in your environment, these tips should get rid of it. I've written more about the need to get confirmation that there really is a problem in your environment on the "Reflections" page.

Menthol crystals are incredibly strong and not healthy to breathe on a regular basis. Do not breathe in the fumes if you can help it and don't stay in any room you are treating! Make a point of using them in sealed areas or bins and open windows or use an exhaust fan to ventilate afterwards.

Some people buy the diffusers that have a candle in them. I used a Mr. Coffee cup warmer instead. There is less chance of fire and I believe it releases more menthol into the air. They can be bought at specialty gourmet stores or housewares/hardware stores for about $10 and run on electricity.

1. Menthol usage for dirty laundry (do not use menthol crystals in the washing machine) —
Clothes are a big reinfection point. Create a dedicated SEALED bin for the dirty laundry. When something is worn, throw it in there. Rule of thumb: NEVER handle worn clothing more than once. The whole idea behind using the bin with crystals is that you want to kill anything in the laundry BEFORE you put it in the wash so that you are not exposing yourself to re-infection when you handle it at the washer. A one lb. bag is $43 and goes a long way. Most likely you won't need more. http://mountainroseherbs.com/search/search.php?refine=y&keywords=Menthol+Crystals

Put clothing in a large bin or garbage pail (not plastic bags), rest the cup warmer on a stable surface within the bin on top of the clothes (a book works well). Place the crystals in a small cup, rest it on the heating element, then turn it on. The crystals will melt. Make sure heating device does not touch fabric or has no chance of tipping over. You do not want to start a fire. You only need a teaspoon to a tablespoon or so of crystals. You'll get the feel for how much you should use over time.

After the clothing has been mentholating for a few hours, you can reach in and turn the laundry ensuring that everything in the bin has been well exposed to the menthol. Do NOT pack clothes tight. Air circulation is a good thing. When you are ready to turn off the heating element, pull the plug rather than opening the bin. Leave the clothes in the sealed container a few more hours for assurance. THEN do your wash. This works well—especially if you have things like down coats.
You can do your shoes this way too or any other items you are unsure of! (Don't use the menthol crystals on computer equipment).

The shortest time I mentholated was 3 hours—but most times I set the crystals up to heat overnight and unplugged in the morning.

Don't worry if when you open the bin you see what looks like cotton candy around the edges of the bin. The crystals might transform when melted. They aren't Morgellons fibers.

Below is one possible setup for using the crystals. I used much smaller bins (the clear plastic kind) with lids and they worked great too.

2. Using menthol crystals on furniture (such as a couch) —
Buy a big plastic drop-cloth from a hardware store with as thick a plastic as is available and 'TENT' your couch. I used 2 cup warmers under mine and let them mentholate overnight or longer. You can tape the tent to the floor if you feel it necessary. I tilted cushions up on end for greater air circulation and turned them occasionally. If you can't place cup warmers underneath, then rest them elsewhere on the couch. I treated couch every couple of weeks initially. You can use this same 'tenting' technique for your computer chair.

Closets can be used as independent mentholation chambers by placing a cup warmer with crystals in them and closing the door.  If you do this and don't wash your clothes, they will smell strong and feel icy to the skin. I wouldn't make a habit of wearing unwashed mentholated clothing as I believe it is unhealthy to inhale the vapors over a long period.

Some people have tried to mentholate rooms. If I were to do this, I'd use a few cup warmers placed throughout the area. Open dresser draws, closet doors, and try to keep in mind that you want to make sure as much air circulation gets around things as possible. Do one room at a time, sealing bottom of the door with a towel. Don't do this if you have fishtanks in the room, and make sure to protect your pets by keeping them out. Open all windows afterwards to ventilate and use a fan if necessary.

3. Computer Equipment —
I disassembled all my equipment including cords and put them into a big bin with mothballs. The kind with 'PARA' in the ingredients. I left them in there for 24 hours. It did the trick.
Mothballs are nasty and toxic, this is a last resort solution and I suggest you do your best to limit exposure especially when it comes to inhaling. Also, note that certain plastic foams will absorb the odor of the mothballs and there is no way to get that smell out. None of my computer equipement absorbed any odor.

If you have a problem in an isolated area such as a room, I'd put a bin right outside the door with diatomaceous earth in it, or methol crystals. Shoes should be taken off anytime you exit the room and left in the bin for a few hours. Beware of tracking infestation around.