Morgellons Disease Awareness
Morgellons Disease: Symptoms, treatments. biting, itching, crawling sensations, rashes, lesions, brainfog and fibers in the skin
This site is dedicated to bringing awareness
to the public about Morgellons Disease, an emerging illness.
Morgellons disease has remained a medical mystery. A systemic illness, symptoms include biting, itching, stinging and crawling sensations that feel like insects moving on or under the skin. This may be accompanied by slow or non-healing sores, rashes and lesions. Additional symptoms are black particles, sand colored granules and other artifacts that are pushed out from the skin, debilitating fatigue, mental confusion, brain-fog, neurological involvement, possible muscle and joint pain, plus fibers or filaments that emerge from the skin. These fibers are the defining symptom of Morgellons which separates it from all other diseases.
Physicians tend to write off the fibers as 'lint' and finding no bugs, label their patients with 'Delusions of Parasitosis.' This diagnosis is often determined without proper examination of the skin using assistive optical devices. Fibers are often microscopic and not readily seen with the naked eye. If doctors would use dermascopes (with magnification from 60-200x), they would see there is indeed a problem going on in the skin of Morgellons patients (see Physicians Reference Guide). If one looks closely, these fibers can be seen below the surface of unscarred tissue.
This misdiagnosis causes patients undue emotional stress and unfairly brands them with a mental illness. Sufferers are hopelessly abandoned by the very medical community they have turned to seeking answers and relief. Instead, they forge ahead, left to fend for themselves as they battle increasingly debilitating symptoms of a disease they know is real.
With this site, I hope to bring awareness to the public and physicians about the phenomena that is taking place. Please see the photo galleries which show these filaments which up till now have been dismissed as 'textile' in nature, as they appear throughout the body's system—in skin, urine, stool, blood, semen and hair—clearly demonstrating the systemic nature of the disease. Not only are the fibers in our bodies, but they show up in our environment, in our drinking water and dust (see comparison page).
Nutritional tests used in Functional Medicine are revealing a host of underlying metabolic problems in the bodies of Morgellons sufferers—yeast, fungal and bacterial overgrowth, stressed adrenals, oxidative stress, blocked detox pathways and malabsorption of nutrients as well as "non-human parasite, taxonomy unknown" and "unknown fungus." These are but a few of the issues this community is up against. Fry labs has identified a previously unknown protozoa that they feel may be involved with Morgellons as well as other chronic infections. Recent research has found borrelia (associated with Lyme disease) in all the lesions studied from Morgellons sufferers.
We ask that people open their minds to the times we are living in. Never before in the history of mankind have we been faced with such an assault to our bodies and the world we live in. Between exposure to heavy metals, chemtrails, genetic engineering (GMOs) both to the environment and food, pollution to our water and air supply, environment disasters (oil spills, nuclear energy) and climate change, it is no wonder that so many are becoming ill. Indeed, Morgellons is considered by many to be a hypertoxicity syndrome.
Those who are currently sick with Morgellons are urged to be proactive with your health. Download the handy pH chart and Hidden GMO ingredients list on the Diet and pH page. Take them with you when you shop. On that same page read some of the ways to boost your health through nutrition, an essential part of treating Morgellons. Print out and share the Awareness Poster, and if you see a doctor, direct them to take a look at the photo galleries.
If you suspect you may have Morgellons but are not sure, an inexpensive hand-held microscope can reveal if you have fibers in your skin. Do not expect your doctor to give you a diagnosis.
Many people have contacted me asking if I know of physicians that can help. I do not keep any practitioner lists. In our culture we've been taught to hold medical doctors in the highest regard and with some health crises they are the absolute way to go, but understand that the current medical community (insurance based, HMOs) seeks to relieve symptoms rather than address the causitive factors underlying health issues and therefore may not be the best route to take with Morgellons.
Most traditional physicians don't know what this disease is, or how to treat it—if they even believe it is real, which leaves you, the patient, to be their guinea pig. Sufferers in the community see anywhere from 10-60 doctors, escalating to out-of-pocket specialists before they give up, broke and no closer to having answers. Also, Morgellons sufferers seem to be more sensitive to reactions from pharmaceuticals—possibly because our detoxification pathways are compromised. This has led in some instances to people being made more ill from prescription meds that are often too strong for them.
In the case of Morgellons, consider looking for alternative healthcare solutions such as a Naturopath or doctors that use Integrative therapies/functional medicine testing, or find a Lyme literate practitioner (LLMD), as a high percentage of Morgellons sufferers also have Lyme disease and often improve with treatment for it. If seeing a Lyme specialist understand that treatment is expensive as these doctors are usually out-of-pocket.
My own path has been to have the nutritional panels that are used in functional medicine and working with Nancy Guberti a certified holistic nutritionist. Some people have shared with me that they were doing well with Naturopaths as another route back to health. Many of us are incorporating different modalities such as herbal medicine, essential oils and homeopathy along with supplementation.
Whatever path you do choose, understand that Morgellons forces a lifestyle change affecting all of your future choices. There is no magic bullet that is going to fix this problem overnight.
Currently there are many people who have fibers in their skin and are totally unaware of it. They are not showing any other symptoms of Morgellons. Healthy skin should not have fibers or particles in it. When, and if this will manifest into full blown expression of the disease remains to be seen.
For those in the throes of biting, itching, stinging and crawling sensations, know that things can change. I am evidence of that. When I became ill I saw no future or way out of this nightmare.
Although I am not "cured," I rarely show outward signs of the disease, and all the worse sensations have stopped. I am back to comfortably living my life and pursuing my dreams. You can get there.
May you find ease on your journey. —Ayla
"One of the things I have learned from the ill people I have worked with since 1986 (especially those in the Lyme community) is that when a lot of people with a lot of motivation begins looking around themselves, searching for answers, they come up with some truly amazing things. If you lock people in a room with only four ways out, someone will find a fifth way out. Always."
—Stephen Buhner (Healing Lyme Coinfections)
A note on the site's photos:
Fungihomeworld's photos (also known as 'homeworld') were culled from more than a year of email correspondence. I include my own photos as well.
Special thanks to:
'homeworld' whose sense of humor in the face of a difficult health crisis, is most refreshing. His fantastic photographs help further educate those seeking to learn about the disease and shed light on how prevalent the fibers are in our environment. See his additional postings at curezone.com and read his fascinating thread on Lymebusters.com titled 'Particle Physics.'
Pamela Crane for bringing the nutritional testing to the community's attention. For her tireless work in finding practitioners who will work with Morgellons sufferers. She has done a great service to the Morgellons community. Check out her blogtalk radio shows.
Nancy Guberti for her solid support, diligence, and focused work with me. I feel our work together has been a real partnership and I'm ever thankful that our paths have crossed. NancyGuberti.com
Wolfe for his friendship and great site dedicated to affordable solutions. MorgellonsAid.Wordpress.com
Trish Springstead for all the help she is providing for Morgellons sufferers in Florida and the work she is doing in wake of the oil spill. MorgellonsReport.com
Tina Engressia for all her links to Lyme educational material and her unfailing positive approach to dealing with life-threatening health issues in the Morgellons and Lyme community. My heartfelt thanks for her contributions to this site.
Gratitude to Rayelta Nayar for all her hard work preparing the pdf files on the bottom of the Links page.
Edith S. for her ability to keep laughing in spite of a miserable situation, for turning me on to essential oils, and for her astute comments and valuable help patrolling the halls for errant commas. A nasty job.
To all the individuals who agreed to let me use their photos. Thank you for your contribution.
...And to the many people I have spoken to who have trusted and shared their stories with me.